Yesterday I had my annual MRI scan and remarked to those present how this year not only did I detect the dulcet tones of Pink Floyd (Astronomie Dominie) but some of the works of Uriah Heap, another group of renown. I then had the opportunity to share this video produced (with much appreciation) by Elisa. Elisa has supplied me with the following in way of giving this project a context.
“Elisa is a Lighting and Interior Design MFA 2017 candidate at Parsons The New School for Design in New York City, USA. Her project lies at the intersection of ethnography and design and focuses on dementia and Alzheimer’s disease, as a way to better understand how society’s general consensus of aging as vulnerability and unfitness may result in exclusion, in spite of the positive contributions of the aging population.
Through listening and observing, and using design as a storytelling platform, the project explores in what way, positive or negative, the progressive loss of memory and cognitive abilities, but also the development of other modes of memorizing and sensing, affect one’s relationship with their environment, and as a result, their ability and opportunities to engage with their communities.
This video is the result of the project. It does not aim to provide a resolution; instead by telling Dennis’ and others’ stories on how dementia affects their lives, it aims to humbly show aging is not a black or white story, and to invite others to question their own behavior toward dementia”
Thank you Elisa
WOW! I think this is going to go viral in the global dementia world. Pat yourself on the back, and Elisa too.
Posted on FB today, about to tweet. (Friday 17 June).
I love how you describe what you feel, think and perceive. Veda loves the MRI, she “astral travels” to the sound.
Clever, and well produced video. Excellent medium and style. It seems to add another dimension to telling one’s story.
It looks like it was fun to make, too.
Congratulations Dennis.
Thankyou Glenys – I do look forward to my annual MRI’s
That was the most amazing thing to see. This video and Dennis’ sharing of his very personal experiences is emblematic of the extraordinarily generous and honest sharing by all of the members of our Advisory Group in the Dementia Friendly Kiama Project.
This video reflects the innovation and determination being practiced on a daily basis by all of these people. This project’s publicly acknowledged success is totally built upon and due to the energy and innovation demonstrated here. Dennis and his colleagues in the Advisory Group are showing us all how to live our lives with meaning purpose and value. To face your fears and to proactively work to maximise and enjoy what you can get out of life…not just because your mortality has been brought into sharp focus by a diagnosis of dementia, but because this is a good way to live your life anyway.
Dennis you are so giving of your time and energy, and the project and our community are benefitting so much from all that you give. Thank you from the bottom of my heart. I feel very lucky to know and work with you, and everyone else for that matter involved in the project. I love you all.
A wonderful display and positive narrative of dementia and the importance of life being for living. I think we often get to caught up in the importance of a perfect memory and yet people have many things to offer and this narrative demonstrates this. Thank you Dennis and Elisa.
Thanks Dennis.
As always i really appreciate the unique insights you provide regarding your experiences. I am always learning from you.
Thanks for sharing the stories and thanks Elisa for production which helps us all to get a sense of the MRI and other experiences that Dennis is describing
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Thank you, Dennis & Elisa, for this wonderful and outstanding masterpiece !!!
This has to be shared all over the global, to give people the chance to get a sense of what it means to live with dementia xxx
My friend Helga Rohra always says: “I´m not suffering with dementia, I live with dementia”
You say:”.. to get involved in developing a local Dementia Friendly community has “Awoken The Sleeper Within”…” …With your wonderful work, you definitely wake up the sleepers within, all over the world!!!
KEEP ON ROLLING, AND KEEP ON HAVING FUN !!!
YOU ROCK !!!
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