Yesterday I had my annual MRI scan and remarked to those present how this year not only did I detect the dulcet tones of Pink Floyd (Astronomie Dominie) but some of the works of Uriah Heap, another group of renown. I then had the opportunity to share this video produced (with much appreciation) by Elisa.
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A story of Diagnosis
I was diagnosed with Younger Onset Froto-Temperal Dementia in mid-2013, a few days after my 59th birthday. It took over a year of persistence on the part of my GP and myself to get to that point. My experiences getting to that point make me ask “How many people do have a form of Dementia that is NOT being diagnosed until much later in life or not at all?” I suspect that there at least as many people with early or mild symptoms that are not diagnosed as there are who are successfully diagnosed.
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Recently I was invited to talk about aspects of the Dementia Friendly Kiama Project – in particular the role of the DAGs on local radio.
This is a recording of that interview provided by the host.
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The following represents my short plenary I address I have privileged to give on Day 2 of the 31st Annual Alzheimer’s Disease International Conference in Budapest. The accompanying PowerPoint Slides references and slides have been omitted.
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After a few days in Budapest, with a choice of Hungarian (language) morning television or BBC News, or BBC Children’s Television I can safely say BBC Kids has more intellectual content than our domestic morning TV. On a more enlightening note Oz wine of the red white or even château cardboard variety is head and shoulders,
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Hello from Budapest, I have survived the first day of the 31st Alzheimer’s Disease International Conference.
I am not surprised to say that the environment chosen by ADI lacks a little in the Dementia Friendly Environment Stakes. On the lighter side two things:
Some Humour –
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Keep placid amid our noise and confusion, and remember what peace there may be in silence.
Speak your truth quietly and clearly; and listen to us, even if we seam dull and ignorant; we too have our story.
Avoid being loud and aggressive to our person;
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As our web site is coming to life I would like to start by welcoming your readership and eliciting your participation in our cause of Advocating for People with a Dementia and those around them. I would also like to publicly thank Barbara for her sterling efforts thus far.
It is our intention that this site will evolve to reflect our needs and express our experience as people with dementia coping with the world in general.
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