Blog Archives

Changes and Challenges

This is a flip book of Changes and Challenges.
It is best viewed full screen (click the [ ] icon bottom right hand corner).

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Posted in Challenges, Our Stories, Resources


Ethics Of Design

Ethics of Design
or
Nothing About Us Without Us

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Posted in Our Stories, Quite Interesting, Resources


Reframing The Rhetoric Around Dementia

Reframing The Rhetoric Around Dementia

The following is a link the a presentation prepared for the 2017 Dementia Australia Conference. Reframing The Rhetoric Around Dementia (2017) 

The better use and more considered use of language around Dementia can help reduce many of the stigmas around dementia.

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Posted in Our Stories, Resources


Parliamentary Friends of Dementia

Recently I was asked to address the NSW Parliamentary Friends of Dementia. What follows is the main content of my address.

Before I begin, I ask your indulgence. If my words seem confused or I stumble, its my Semantic Frontotemporal Dementia re-editing the wiki that is my internal lexicon.

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Posted in Events, News, Our Stories


Building A Dementia Friendly World, Kyoto 2017

The Building A Dementia Friendly World symposium was held last week, co-organised by Alzheimer’s Society and the WHO Kobe Centre as part of the ADI2017 conference in Kyoto.  This was one of several pre-conference symposia and a chance to see a broad global representation of Dementia Friendly initiatives.

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Posted in Inclusive Communities, Kiama Project, News, Our Stories, Resources


To Fight Or Not To Fight

We are constantly presented #1 with sensationalist representations of dementia. We are presented with words and phrases such as the following

  • Battling Dementia #2
  • A Dementia Tsunami #3
  • Suffering with Dementia #4

The language being used to report on Dementia is the same sensational language used to report on war.

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Posted in News, Our Stories, Quite Interesting, Resources


Artful

Artful: Art and Dementia at the Museum Of Contemporary Art

Recently I had the pleasure of undertaking the Artful program at the MCA (Museum of Contemporary Art). This program has two aspects – a research component that is conducted by the Brain and Mind Centre, University of Sydney,

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Posted in Our Stories, Quite Interesting, Resources
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Sydney Morning Herald – Kate Swaffer Interview

Author Kate Swaffer on living beyond dementia diagnosis

The following is a link to the Sydney Morning Herald article that appeared today –
Saturday November 26th 2016

Kates Interview

 

 

 

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Posted in Kiama Project, News, Our Stories


Whats Happening To My Brain?

The following is a short video in which I am attempting to use artistic license to show an interpretation of the changes that are occurring in my brain. This short three minute video represents about 100 hours of single frame editing to achieve my animation. Hopefully this will illustrate how amyloid plaques may  be degrading the way my neurons behave.

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Posted in Our Stories, Resources


Helping The Cause of People With Dementia

It has been suggested that some of my posts may not be helping our cause, the recognition of people with dementia as people, but I would suggest if our distractors spent more time listening to Jethro Tull or even Twisted Sister the world would be a better place.

We are all individuals,

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Posted in Our Stories, Quite Interesting


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